Autism symptoms for kid

[nag123bms123]

8 hours ago, Renault said:

thatha athaa abba ..ee 3 words anetodu when he was 12-15 months…now he forgot those also..

Can you please check if he is able to hear normally? My son had the exact same issue at this age. We were worried about Autism but he got fluid stuck in his ears because of which he is unable to hear anything. It was fixed through a small surgery and he is fine now.

Just turn on your TV or any audio device to full volume when he is near by and see if he reacts to that. If not, take him to ENT specialist for a hearing test. 

[duryaodhana]

12 hours ago, Renault said:

my kid is now 22 months. regular appointment ki doctor daggariki pothe edo checklist ichar andulo mostly no ani pedte he suggetsed check for austism evaluation. He did not confirmed but some aymptoms like pointing, responding to name he is not following.. inka speech delay kuda undi..not saying any words yet..any suggestions? Autism confirm aithe is it curable? What can we do.? 

https://chat.whatsapp.com/HvWUkCkDngLDuvHzhS88TS

Join this WhatsApp group.. there are all Telugu people... Call one or two, they can provide you some insights 

[coffee]

Take kid to india and have him socialise 

[shaw183]

10 hours ago, Renault said:

ma vadu inka not evn 2 yrs bro..socialize ante vere kids aadutunte vallatho kalustad but vallu around 5,6 yrs age..veedu vaadokkate aadukuuntad…inka intlo oka nimisham kuda kaali undadu edoti teeyadam .. moola ki koorchodam ala em undadh..

toe walking spinning headbanging..non verbal.. evartho kalvadu... too hyperactive.. flapping & clapping hands.. eeeeeee,oooooooooo constant sounding.. evevi lekunte he is super fine. good luck

[summer27]

12 hours ago, Renault said:

my kid is now 22 months. regular appointment ki doctor daggariki pothe edo checklist ichar andulo mostly no ani pedte he suggetsed check for austism evaluation. He did not confirmed but some aymptoms like pointing, responding to name he is not following.. inka speech delay kuda undi..not saying any words yet..any suggestions? Autism confirm aithe is it curable? What can we do.? 

@Renault - My kid had the same problem.

Symptoms included - No pointing, no eye contact, always crying, no mama, papa nothing zero verbal at the age of 22 months. He didn't play with other kids, not even with his elder brother. A few more symptoms as well which I can explain if you want to listen. We had just landed to US at that point and it was our first visit to pediatrician here. She was an old lady and observing his behaviour for about 5 min in the room, she suggested to get the autism evaluation done and go for the services that county has to offer.

Btw, for anyone who just looks from outside he looked like any normal kid. fortunately he was physically healthy, no problems there. So just like a lot of people in this DB, all our family & friends suggested either to ignore said he will grow up fine OR they suggested to go to India. 

My wife was in complete denial. It took a couple of months for me to digest the fact and I went ahead with evaluation.( Mainly because of two reasons - the therapies are non-medicinal & the services are almost free , I had nothing to lose)

Like people said here, evaluation and diagnosis took about 4-6 months. Having said that in hindsight it was a really good decision. 

Till kid turns 3 years old, our county ( I lived in San Diego at that time) offered ABA therapy speech and occupational that was 2 hours a day, 5 days a week. Therapist used to come home. Just like yours since we identified at around 24 months and the evaluation and diagnosis took another 5 months. This therapy started at the age of 29-30 months. Count offers free services only until kid turns 3.  After 3 years they moved him to a special needs school. So basically we got that ABA only for 5 months.

But since my insurance covers ABA, I had the therapy continued even though he was going to special needs school (actually even in school they get these therapies and teaching). So it was like mornings therapy in school, afternoons therapy at home.

Note the two factors that are important - Early intervention (start the therapy at very early age) and second keep it intense, never relax until kid achieves the smaller goals.

We haven't travelled anywhere - no trips, no india visits for 6 years, just to make sure there are no breaks in his therapy. I didn't change my job (that sucked to its core) because I didn't want to relocate. Lots of compromises. You and your spouse should talk and understand and stand by each other through out the process..

Just to let you know, my kid is now in 3rd grade. He goes to normal school and has recovered about 98%. There are a couple of minor issues which we are still working but those are minor quirks and I am sure he will be fine.

Let me know if you need any more details..

 

[Abhagyudu]

10 minutes ago, summer27 said:

@Renault - My kid had the same problem.

Symptoms included - No pointing, no eye contact, always crying, no mama, papa nothing zero verbal at the age of 22 months. He didn't play with other kids, not even with his elder brother. A few more symptoms as well which I can explain if you want to listen. We had just landed to US at that point and it was our first visit to pediatrician here. She was an old lady and observing his behaviour for about 5 min in the room, she suggested to get the autism evaluation done and go for the services that county has to offer.

Btw, for anyone who just looks from outside he looked like any normal kid. fortunately he was physically healthy, no problems there. So just like a lot of people in this DB, all our family & friends suggested either to ignore said he will grow up fine OR they suggested to go to India. 

My wife was in complete denial. It took a couple of months for me to digest the fact and I went ahead with evaluation.( Mainly because of two reasons - the therapies are non-medicinal & the services are almost free , I had nothing to lose)

Like people said here, evaluation and diagnosis took about 4-6 months. Having said that in hindsight it was a really good decision. 

Till kid turns 3 years old, our county ( I lived in San Diego at that time) offered ABA therapy speech and occupational that was 2 hours a day, 5 days a week. Therapist used to come home. Just like yours since we identified at around 22 months and the evaluation and diagnosis took another 5 months. This therapy started at the age of 25 months. Count offers free services only until kid turns 3.  After 3 years they moved him to a special needs school. So basically we got that ABA only for 5 months.

But since my insurance covers ABA, I had the therapy continued even though he was going to special needs school (actually even in school they get these therapies and teaching). So it was like mornings therapy in school, afternoons therapy at home.

Note the two factors that are important - Early intervention (start the therapy at very early age) and second keep it intense, never relax until kid achieves the smaller goals.

We haven't travelled anywhere - no trips, no india visits for 6 years, just to make sure there are no breaks in his therapy. I didn't change my job (that sucked to its core) because I didn't want to relocate. Lots of compromises. You and your spouse should talk and understand and stand by each other through out the process..

Just to let you know, my kid is now in 3rd grade. He goes to normal school and has recovered about 98%. There are a couple of minor issues which we are still working but those are minor quirks and I am sure he will be fine.

Let me know if you need any more details..

 

My son is referred to this program..is this similar to what your county provides

Pre-school Program for Children with Disabilities (PPCD)

The Pre-school Program for Children with Disabilities (PPCD) is designed to meet the unique needs of young children ages 3 through 5 years of age who meet special education eligibility criteria.

[Gorantlamdhav]

12 hours ago, Renault said:

my kid is now 22 months. regular appointment ki doctor daggariki pothe edo checklist ichar andulo mostly no ani pedte he suggetsed check for austism evaluation. He did not confirmed but some aymptoms like pointing, responding to name he is not following.. inka speech delay kuda undi..not saying any words yet..any suggestions? Autism confirm aithe is it curable? What can we do.? 

They go by book . Meevodu normal vundochu .ee age lo active ga adukovadam, dookadam, visireyyadam, adigindi techi iyyadam, manam chesey panulu copy kottadam, nalla on chesi aadukovadam, table ekkadam, mana eye contact cheyyadam, smile ivvadam, kopam vostey kottadam or alagadam.. ilantivi chestey chalu. maatalu kondaru 4-5 age daaka kuda matladaru.konni days mee family ni india pampu parents can judge better 

[summer27]

Just now, Abhagyudu said:

My son is referred to this program..is this similar to what your county provides

Pre-school Program for Children with Disabilities (PPCD)

The Pre-school Program for Children with Disabilities (PPCD) is designed to meet the unique needs of young children ages 3 through 5 years of age who meet special education eligibility criteria.

Yes. It's the same program.

[Vaampire]

30 minutes ago, summer27 said:

@Renault - My kid had the same problem.

Symptoms included - No pointing, no eye contact, always crying, no mama, papa nothing zero verbal at the age of 22 months. He didn't play with other kids, not even with his elder brother. A few more symptoms as well which I can explain if you want to listen. We had just landed to US at that point and it was our first visit to pediatrician here. She was an old lady and observing his behaviour for about 5 min in the room, she suggested to get the autism evaluation done and go for the services that county has to offer.

Btw, for anyone who just looks from outside he looked like any normal kid. fortunately he was physically healthy, no problems there. So just like a lot of people in this DB, all our family & friends suggested either to ignore said he will grow up fine OR they suggested to go to India. 

My wife was in complete denial. It took a couple of months for me to digest the fact and I went ahead with evaluation.( Mainly because of two reasons - the therapies are non-medicinal & the services are almost free , I had nothing to lose)

Like people said here, evaluation and diagnosis took about 4-6 months. Having said that in hindsight it was a really good decision. 

Till kid turns 3 years old, our county ( I lived in San Diego at that time) offered ABA therapy speech and occupational that was 2 hours a day, 5 days a week. Therapist used to come home. Just like yours since we identified at around 24 months and the evaluation and diagnosis took another 5 months. This therapy started at the age of 29-30 months. Count offers free services only until kid turns 3.  After 3 years they moved him to a special needs school. So basically we got that ABA only for 5 months.

But since my insurance covers ABA, I had the therapy continued even though he was going to special needs school (actually even in school they get these therapies and teaching). So it was like mornings therapy in school, afternoons therapy at home.

Note the two factors that are important - Early intervention (start the therapy at very early age) and second keep it intense, never relax until kid achieves the smaller goals.

We haven't travelled anywhere - no trips, no india visits for 6 years, just to make sure there are no breaks in his therapy. I didn't change my job (that sucked to its core) because I didn't want to relocate. Lots of compromises. You and your spouse should talk and understand and stand by each other through out the process..

Just to let you know, my kid is now in 3rd grade. He goes to normal school and has recovered about 98%. There are a couple of minor issues which we are still working but those are minor quirks and I am sure he will be fine.

Let me know if you need any more details..

 

Thanks for sharing this bro. Very inspiring and positive vibes. Good start to the week

[terminator_desi]

34 minutes ago, summer27 said:

@Renault - My kid had the same problem.

Symptoms included - No pointing, no eye contact, always crying, no mama, papa nothing zero verbal at the age of 22 months. He didn't play with other kids, not even with his elder brother. A few more symptoms as well which I can explain if you want to listen. We had just landed to US at that point and it was our first visit to pediatrician here. She was an old lady and observing his behaviour for about 5 min in the room, she suggested to get the autism evaluation done and go for the services that county has to offer.

Btw, for anyone who just looks from outside he looked like any normal kid. fortunately he was physically healthy, no problems there. So just like a lot of people in this DB, all our family & friends suggested either to ignore said he will grow up fine OR they suggested to go to India. 

My wife was in complete denial. It took a couple of months for me to digest the fact and I went ahead with evaluation.( Mainly because of two reasons - the therapies are non-medicinal & the services are almost free , I had nothing to lose)

Like people said here, evaluation and diagnosis took about 4-6 months. Having said that in hindsight it was a really good decision. 

Till kid turns 3 years old, our county ( I lived in San Diego at that time) offered ABA therapy speech and occupational that was 2 hours a day, 5 days a week. Therapist used to come home. Just like yours since we identified at around 24 months and the evaluation and diagnosis took another 5 months. This therapy started at the age of 29-30 months. Count offers free services only until kid turns 3.  After 3 years they moved him to a special needs school. So basically we got that ABA only for 5 months.

But since my insurance covers ABA, I had the therapy continued even though he was going to special needs school (actually even in school they get these therapies and teaching). So it was like mornings therapy in school, afternoons therapy at home.

Note the two factors that are important - Early intervention (start the therapy at very early age) and second keep it intense, never relax until kid achieves the smaller goals.

We haven't travelled anywhere - no trips, no india visits for 6 years, just to make sure there are no breaks in his therapy. I didn't change my job (that sucked to its core) because I didn't want to relocate. Lots of compromises. You and your spouse should talk and understand and stand by each other through out the process..

Just to let you know, my kid is now in 3rd grade. He goes to normal school and has recovered about 98%. There are a couple of minor issues which we are still working but those are minor quirks and I am sure he will be fine.

Let me know if you need any more details..

 

@summer27Thanks for sharing this valuable information.My kid is also on the spectrum (currently in 1st grade)and we started speech/OT at age 3 and ABA from 3.5 years.We also seen lot of improvement but he still has stimming(stretches his hand when excited) and hyper activity.Did you kid had stimming behaviour as well and it went away?Any suggestions for reducing hyperactivity?

[bramhacharimogudu]

1 hour ago, duryaodhana said:

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[summer27]

23 minutes ago, terminator_desi said:

@summer27Thanks for sharing this valuable information.My kid is also on the spectrum (currently in 1st grade)and we started speech/OT at age 3 and ABA from 3.5 years.We also seen lot of improvement but he still has stimming(stretches his hand when excited) and hyper activity.Did you kid had stimming behaviour as well and it went away?Any suggestions for reducing hyperactivity?

@terminator_desi He used to flap his hands when excited (and even during normal times also). It gradually reduced over time. But keep reminding this to the ABA team and keep this as a goal. 

Reducing hyper activity - I followed a few things. I am not suggesting that it may work for all, but worth a try.

1. I bought a small trampoline at kept in my apartment. Whenever is hyper or crying a lot or angry, I leave him on it so that he jumps enough to calm down and relax.

2. Every day at least for an hour take him to a park where there is a lot of space and leave him there in parks, My wife and I stand at each end of park to make sure he is not going to the roads/parking lots, and let him run as much as he wants, give him a ball or something. When we come home by night he was so tired. We used to have food ready in car to feed him in car so that even if he falls asleep we don't have to wake him up later.

3. Weekends, I used to take him to on long hikes.  You don't believe the hikes he has done at the age of 4-5, He easily used to hike up hills of at least 2 miles. God, so much energy.

3. Never ever give him electronics to watch, that's the worst thing to happen to a kid who is hyper active. They are highly prone to get addictive.

4. Introduce him to Legos of possible, It's a very good therapy on its own. 

5. We had a change in the therapist for about 3 months, as the the one who was attending him to go on a family emergency. The new therapist was very good at drawing and some how introduced him to write/draw. Since then it really stuck to him. Even today his most favorite pastime is to write stories. He just writes a simple paragraph and draws the related picture underneath it (just like comic book). Our house is full of such papers/notes. You can try that as well. Drawing/writing.

5.  Generally with occupational therapy the hyperactivity should gradually come down. If that's not happening keep asking them in your goals discussion.

6. Keep trying to introduce him to a variety of things, football, cricket, sprinting, running, drawing, legos etc. I am sure he will just pick one of them. One good thing I saw with kids in spectrum is- whatever they choose they do it with full intensity. Very good chance that they excel in that activity.

 

[terminator_desi]

53 minutes ago, Gorantlamdhav said:

They go by book . Meevodu normal vundochu .ee age lo active ga adukovadam, dookadam, visireyyadam, adigindi techi iyyadam, manam chesey panulu copy kottadam, nalla on chesi aadukovadam, table ekkadam, mana eye contact cheyyadam, smile ivvadam, kopam vostey kottadam or alagadam.. ilantivi chestey chalu. maatalu kondaru 4-5 age daaka kuda matladaru.konni days mee family ni india pampu parents can judge better 

ivanni ok kani stimming/hand flapping cheydam, eeeee/ooooo sounds cheyadam , Peru pelisse response ivaka povadam ,minimal eye contact ante confirmed autism.Also autism is not a disease it a different ability.Lot of fake doctors(called defeat autism doctors) say they can cure autism  with stem cell treatment etc but it cannot be cured.It will be there throughout ones life span.But they will learn to cope up those issues with autism as age progresses.This is harsh reality.Taking kids to India/grand parents is not going to help.Only quality ABA/speech/OT/social skills training therapies will help them to overcome the challenges

[summer27]

36 minutes ago, terminator_desi said:

ivanni ok kani stimming/hand flapping cheydam, eeeee/ooooo sounds cheyadam , Peru pelisse response ivaka povadam ,minimal eye contact ante confirmed autism.Also autism is not a disease it a different ability.Lot of fake doctors(called defeat autism doctors) say they can cure autism  with stem cell treatment etc but it cannot be cured.It will be there throughout ones life span.But they will learn to cope up those issues with autism as age progresses.This is harsh reality.Taking kids to India/grand parents is not going to help.Only quality ABA/speech/OT/social skills training therapies will help them to overcome the challenges

Totally agree.

 

To all who are sailing in this boat, my sincere suggestion is - try to leverage all the tools & services that the doctors/therapists have to offer here in US. 

At one point when I had visa issues and was thinking of going back to India, I did some research on the facilities and treatment in India. I didn't find them satisfactory, but then again its just my opinion. Moreover these therapies cost you in India where as it is free and also good here.

Some other important points to keep in mind -

1. Not all ABA therapists come with same quality. Always keep an eye and be thorough in goal settings/review. But at the same time don't keep changing the therapists often just because you are not seeing progress. The results are often slow. (there is a fine balance, you need to be cautious).  The sessions may look ridiculously simple to you as if they are babysitting your kids. But trust me they are very effective.

2. Keep an eye on your kids regression also. Sometimes kid achieves a goal (say learns to say tata/bye-bye) but in next few months he/she forgets again. Or there is a change in the way your kid is talking , example kid starts to talk normally but in next couple of months he is talking in a different/awkward way. All these changes could be sometimes because your kid is imitating other special needs kids (who has more severe problem) from his class/group.  This happened to my kid once. We always kept track and the moment we observed this change, we met with the school and requested them move my kid to other groups that are equivalent or better in the spectrum.

 

PS: It's been a long time since I opened up and also had patience & time to write up all this. I should pin this thread for myself incase if others need this info. 

PPS: I really hate to call this "treatment". I always refer to them as therapy or sessions or classes. IMO it's not really treatment as they are non-medicinal Or I don't know I just don't like the word in this context. I am starting to blabber a lot..  

[AndhraneedSCS]

How many hours a day does the kid watch electronic gadgets/TV?